Tuesday , November 12 2019
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It has a rare disease and can be burned alive with sunlight



The 54-year-old woman left much of his life was locked up in his home suffers from a rare disease that kept her away from the world, If it comes in contact with a ray of sunshine, it can cause a great wound and unbearable pain.

Fatima Pérez suffers from a rare disease Genetic and hereditary, which affects the skin has xerodermal pigmentosum (XP) that caused him to suffer intense pain in the case of exposure to ultraviolet rays and even artificial lighting.

A woman can not leave the house during the day or when the sky is cloudy, it is because of illness that even a lighted lamp can hurt her.

The woman created a website that helps people affected by XP, and her story has been thoroughly understood.

According to Fatima in 1998, a few doctors did not know about this disease, so she underwent a lot of treatments that instead of curing her more complicated her health, even because of the treatments he had severe burns all over his body and unfortunately I lost my eye.

After no one could explain what she had, the woman and her brother went to the United States looking for someone to help her.

He currently lives in Connecticut, in the United States and created a foundation called XP Luz de Esperanza Group.

He ensures that going outside is complicated, he must wear dark glasses, gloves, a sunscreen and a coat of over two kilograms, but he does not want to give up.or the goal is to create awareness about xeroderma pigment and find resources that will helpLatin American families affected by this disease.


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